View all text of Part R [§ 280i - § 280i-4]
§ 280i–3. Reports to Congress
(a) Progress report
(1) In general
(2) ContentsThe report submitted under subsection (a) shall contain—
(A) a description of the progress made in implementing the provisions of the Autism CARES Act of 2019;
(B) a description of the amounts expended on the implementation of the amendments made by the Autism CARES Act of 2019;
(C) information on the incidence and prevalence of autism spectrum disorder, including available information on the prevalence of autism spectrum disorder among children and adults, and identification of any changes over time with respect to the incidence and prevalence of autism spectrum disorder;
(D) information on the average age of diagnosis for children with autism spectrum disorder and other disabilities, including how that age may have changed over the 4-year period beginning on September 30, 2019, and, as appropriate, how this age varies across population subgroups;
(E) information on the average age for intervention for individuals diagnosed with autism spectrum disorder and other developmental disabilities, including how that age may have changed over the 4-year period beginning on September 30, 2019, and, as appropriate, how this age varies across population subgroups;
(F) information on the average time between initial screening and then diagnosis or rule out for individuals with autism spectrum disorder or other developmental disabilities, as well as information on the average time between diagnosis and evidence-based intervention for individuals with autism spectrum disorder or other developmental disabilities and, as appropriate, on how such average time varies across population subgroups;
(G) information on the effectiveness and outcomes of interventions for individuals diagnosed with autism spectrum disorder, including by severity level as practicable, and other developmental disabilities and how the age of the individual or other factors, such as demographic characteristics, may affect such effectiveness;
(H) information on the effectiveness and outcomes of innovative and newly developed intervention strategies for individuals with autism spectrum disorder or other developmental disabilities;
(I) a description of the actions taken to implement and the progress made on implementation of the strategic plan developed by the Interagency Autism Coordinating Committee under section 280i–2(b) of this title; and
(J) information on how States use home- and community-based services and other supports to ensure that individuals with autism spectrum disorder and other developmental disabilities are living, working, and participating in their community.
(b) Report on the health and well-being of individuals with autism spectrum disorder across their lifespan
(1) In general
(2) ContentsThe report submitted under paragraph (1) shall contain—
(A) demographic factors associated with the health and well-being of individuals with autism spectrum disorder;
(B) an overview of policies and programs relevant to the health and well-being of individuals with autism spectrum disorder, including an identification of existing Federal laws, regulations, policies, research, and programs;
(C) recommendations on establishing best practices guidelines to ensure interdisciplinary coordination between all relevant service providers receiving Federal funding;
(D) comprehensive approaches to improving health outcomes and well-being for individuals with autism spectrum disorder, including—
(i) community-based behavioral supports and interventions;
(ii) nutrition, recreational, and social activities; and
(iii) personal safety services related to public safety agencies or the criminal justice system for such individuals; and
(E) recommendations that seek to improve health outcomes for such individuals, including across their lifespan, by addressing—
(i) screening and diagnosis of children and adults;
(ii) behavioral and other therapeutic approaches;
(iii) primary and preventative care;
(iv) communication challenges;
(v) aggression, self-injury, elopement, and other behavioral issues;
(vi) emergency room visits and acute care hospitalization;
(vii) treatment for co-occurring physical and mental health conditions;
(viii) premature mortality;
(ix) medical practitioner training; and
(x) caregiver mental health.
(July 1, 1944, ch. 373, title III, § 399DD, as added Pub. L. 109–416, § 3(a), Dec. 19, 2006, 120 Stat. 2828; amended Pub. L. 112–32, § 2(4), Sept. 30, 2011, 125 Stat. 361; Pub. L. 113–157, § 6, Aug. 8, 2014, 128 Stat. 1834; Pub. L. 116–60, § 3(d), Sept. 30, 2019, 133 Stat. 1113.)